More Resources & Support         

 

(ADHD) CHADD ............... 369-0045

www.chadd.net/810   Meets first Wednesday of the month, 7-9pm at Bradley Hospital.  Promotes and provides education and support for ADHD in adults and children.

 

AIDS Care Ocean State ............... 521-3603

18 Parkis Ave., Providence

www.aidscareos.org

 

Anorexia and Bulimia Assoc. of RI ............... 861-2335

35 S. Angell St., Providence

Offers support and referrals.

 

Arthritis Foundation, New England Region, Inc. ............... 739-3773

2348 Post Road, Suite 104, Warwick  www.arthritis.org/rhode-island/

Your local Arthritis Foundation chapter offers information, programs and

services to assist you.

 

Asperger/Autism Network ............... 762-1763

www.aane.org

Support group for parents of adults or older children with Asperger’s Disorder.

Meets second Monday of the month during the school year in the Pine Room at Bradley Hospital.

 

(Asthma) Community Education and CVS/pharmacy Draw a Breath Programs ............... 444-8340

The CVS Pharmacy Draw A Breath Program at Hasbro Children’s Hospital is designed to help children with asthma improve the management of their condition.

 

(Autism) Community Autism Resources ............... 508-379-0371, x11, 16, 13

www.community-autism-resources.com

 

Autism Project ............... 785-2666

www.theautismproject.org

1516 Atwood Ave., Johnston

 

(Blindness) DHS Services for Children Who Are Blind or Visually Impaired ............... 222-2300

 

(Blindness) IN-SIGHT ............... 941-3322

43 Jefferson Blvd., Warwick

www.in-sight.org

Family support groups for people with visual impairments or who are legally blind.

 

(Blindness) National Federation of the Blind of RI ............... 433-2606

PO Box 14404, East Providence

www.nfbri.org

 

Brain Injury Assoc. of RI ............... 228-3319

www.biari.org

197 Waterman Ave., East Providence

 

Cancer Information Service of the National Cancer Institute ............... (800) 4-CANCER

 

(Cancer) Kids Talk ............... 274-1122, x47284

This Women & Infants Hospital’s Breast Health Center support group is for kids ages 8-12 whose family members have been diagnosed with cancer. Sessions are scheduled on Monday, second floor, Women & Infants’ Breast Health Center, One Blackstone Place, Prov.  Please call for specific dates.

 

(Cancer) Tomorrow Fund ............... 444-8811

www.tomorrowfund.org

Providing emotional and financial support to families with children undergoing long-term cancer treatment in the Tomorrow Fund Clinic at Hasbro Children’s Hospital. 

 

Cystic Fibrosis RI/MA Chapter  

Local chapter  ............... 508-655-6000

www.cff.org/chapters/mass-ri/

 

(American) Diabetes Association (ADA) ............... 351-0498

ADA’s mission is to prevent and cure diabetes and to improve the lives of those affected by diabetes. Monday through Friday 9-5. 

Visit www.diabetes.org.

 

Down Syndrome Society of RI ............... 463-5751

99 Bald Hill Road, Cranston www.dssri.org

Epilepsy Foundation of Massachusetts and Rhode Island ............... 888-576-9996

www.epilepsynewengland.org

Ask about our H.O.P.E. (Helping Other People with Epilepsy) Mentoring Program.

 

Family Voices of RI ............... 270-0101

www.RIPIN.org

1210 Pontiac Ave., Cranston

A national grassroots network of families and friends speaking on behalf of children with special health care needs. Provide info., education, advocacy and support to families and professionals, bi-monthly newsletter and parent groups.

 

Federation for Children With Special Needs, Inc. ............... 617-236-7210

www.FCSN.org

Info., referrals, and support to parents.

 

Leukemia & Lymphoma Society of America, RI Chapter ............... 943-8888 ... 1-800-955-4572

2348 Post Road, Suite 202, Warwick

www.lls.org    First Connection - match recently diagnosed patients with those out of treatment. Patient aid, self evaluation, transportation, medication.  Educational programs.  Support groups.

 

March of Dimes Foundation ............... 454-1911

220 West Exchange St., Providence

www.MarchofDimes.com/rhodeisland

Mental Health Association of RI ............... 726-2285

www.mhari.org

345 Blackstone Blvd., Providence

 

(Mental Health) NAMI-CAN of Rhode Island ............... 331-3060

www.namirhodeisland.org

Support groups/programs for families of children & adolescents with mental illnesses/neurobiological disorders.

 

(RI) Multiple Myeloma Support Group ............... 463-5709

Carol Murray-Rossi /rimmsg@cox.net

 

Muscular Dystrophy Association ............... 732-1910 ... 1-800-289-8805

931 Jefferson Blvd., Warwick

www.mda.org  providence@mdausa.org

Muscular Dystrophy Support Group (Hasbro Children’s Hospital) - adults and children welcome. The group meets bi-monthly on Wednesdays from 6 to 8 pm. Call for the meeting dates. Contact: Deborah Bartone, RN at 444-5230.

 

National Organization for  Rare Disorders (NORD) ............... 800-999-6673

www.rarediseases.org

 

Osteogenesis Imperfecta (OI)

Hasbro Children’s Hospital OI support group is open to children and adults with OI and their family members. The group meets on the first Thursday of the month, from 6:30 to 8pm. Contact: Susan Kortick, RN at 444-5794.

 

Phenylketonuria (PKU)

Sponsored by Hasbro Children’s Hospital, the PKU support group is a group of individuals, concerned parents, family members and friends supporting, educating and advocating for people affected by PKU. The group meets on the second Wednesday of the month.

Contact: Julie Johnston, RD, LDN at 444-8491

 

Rhode Island Disability Law Center ............... 831-3150

275 Westminster, Suite 401, Providence

www.RIDLC.org

 

Rhode Island Housing ............... 457-1234                            

www.rhodeislandhousing.org

Together with its partners, Rhode Island Housing works to ensure that all people who live and work in Rhode Island can afford a healthy home that meets their needs. Rhode Island Housing uses all of its resources to provide low-interest loans, grants, education and assistance to help Rhode Islanders find, rent, buy, build and keep a good home. It also offers special programs to ensure that these homes are safe and healthy

 

Rhode Island School for the Deaf ............... 222-3525

One Corliss Park, Providence www.rideaf.net

 

Sargent Rehabilitation Center ............... 886-6600

www.sargentcenter.org

800 Quaker Lane, Warwick

Sargent offers special education services in a day school program to children ages 3 to 21 who are diagnosed with autism spectrum disorders, sensory integration disorders, developmental delays, language/learning disabilities and other neurologic or genetic disorders.

Also offers programs for young adults and adults who have sustained traumatic brain injuries, strokes, aneurysms, or other neurologic injuries.

 

Special Needs Support Group - Hasbro Children’s Hospital

Support group for families and caregivers of children with special healthcare needs is presented in partnership with Rhode Island Parent Information Network and Family Voices. The group meets on the first Monday of the month.

Contact: Lisa Landry at 444-8485.

 

Spina Bifida Association ............... 1-800-621-3141

www.spinabifidaassociation.org

The Spina Bifida Support Group

Hasbro Children’s Hospital support program for families of children with Spina Bifida. The group meets on the third Tuesday of the month. Group activities include guest speakers, off campus trips, and a catheterization group. Loneliness, isolation, girls “cathing” in public, social issues, bullying, and fashion are among the key topics covered. Contact: Barbara Crosby at 444-3686.

 

United Cerebral Palsy ............... 728-1800

200 Main St., Pawtucket. www.ucpri.org

 

General Resources     

 

Bradley Hospital 24-Hour Crisis Support ............... 1-855KIDLINK

 

Department of Human Services ............... 462-5300

www.dhs.ri.gov

 

Family Resource Center, Hasbro Children’s Hospital  ............... 444-6090 

A library dedicated to providing personalized health information to help parents become active participants in their child's medical care. 

The Family Resource Center assists patients and their families as well

as hospital staff and people in the community.

 

Health Information Line ............... 401-222-5960/RI Relay 711

English and Spanish speaking operators answer questions Monday-Friday, 8:30am-4:30pm. Located at the Rhode Island Department of Health.

 

Healthline ............... 1-800-921-9299

Hispanic Healthline

                   ... 1-888-44MUJER

                       (1-888-446-8537)

A Women & Infants’ physician referral and healthline staffed with nurses who can answers questions about your health or that of a loved one.  For more resources for families, including our health reference library, classes and programs, go to www.womenandinfants.org.

 

Lifespan Health Connection ............... 444-4800 ... 1-800-927-1230

www.lifespan.org

Free service connecting you to Lifespan and partner hospital services, events and programs

-Lifespan Laboratories

                 ......................... 793-4242

              ............... 1-800-980-4244

 50 RI Patient Service Center Lab

 locations – no appt. required

 -Lifespan Community Health Institute ........................... 444-8069

335R Prairie Ave., Suite 2B, Providence, RI 02905

Serving health education needs in our RI communities.

 

National Health Information Center ............... 800-336-4797

Health information referral service.

 

The Rhode Island Department of Health   

www.health.ri.gov

A wonderful resource for all of the latest local health information from disease control to early intervention to nutritional guidelines. 

 

Paul V. Sherlock Center on Disabilities ............... 456-8072

www.sherlockcenter.org

Rhode Island College, 600 Mt. Pleasant Ave., Providence.  Founded at RIC in 1993, this program is a member of a national network of programs that advance the opportunities for individuals with developmental and other disabilities, their families, and communities through training and technical assistance Resource library.

 

United Way 2-1-1

A free and confidential service that helps people find the local resources that they need,  24/7.

Contact Us:

 

P.O. Box 613, Wyoming, RI 02898 

sheryl@fullchannel.net

Tel: 401-247-0850 

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